I initially started this blog and documentation of my memories as a way to have something my daughters can look over and get an understanding of who their father was and what his experiences were. A real motivation from fear that one day my disease will may end up in the abrupt closing of my story.
My photos have always been an expression of my feelings, as I move through life, and historically I wanted my daughters to view my photos and tap into some of the feelings I’ve felt when looking through my eyes.


Here we are in 2023, and I honestly never thought I’d be witness to this time. Maybe I’m being hyperbolic as a result of having constant anxiety of living with this disease, but I feel more recently I’ve turned a chapter. Every new moment with my family is a blessing I never thought I’d have, and so my perspective of life has changed.


With this new cognitive freedom, my mindset has flipped from one that’s waiting for the end, to one that is of squeezing out the most of life as I can. I’m finding my motivation for creating photos now isn’t that anxiety driven need to capture what I can before the time runs out, but of one of inner reflection and better understanding myself.
I’m genuinely very happy.
Oh man so so sorry to hear about your disease. I really understand you as much as i can of course your willing to express yourself and to build this virtual “museum” for your family. Just yesterday evening when I searched some old images and browsed through the archives i found myself thinking about how many unselected and unpublished stories i have and who will find them if I will disappear one day. I have no answer. I have no time to sit on my archives. This makes me sad. Finally, i understand that what I’m doing its mostly important for myself, but still there’s a hope that someone will need and will use my images somewhere in future.
Thanks Victor! I love the analogy of a virtual museum, that really resonates with me. It’s interesting reflecting on your motivations you know?
I feel like these days my motivation is still to create images to share with the family, but not out of fear of not being able to communicate them, but more to provide them the opportunity to see the world through my eyes.
I have no doubt people will need and use your photos in the future, your images are fabulous. 🙂